My niece Everlee just turned 1! When a child turns one the party is usually for the adults more than the kids.
As parents it is the birthday we usually will remember the most; the lil ones probably will have no recollection of it at all. The great thing about blogging is we now have a moment in time recorded as if a photojournalistic diary available to the world and our lil ones!
This B-Day is especially special and one I want Everlee to know about, one for her parents and sister to cherish. My niece Everlee was born with special circumstances; turning one, thriving and being absolutely amazingly strong means the world to anyone who has ever met her! Everlee was born with Spina Bifida ("Spina bifida is the most common of a group of birth defects known as neural tube defects, which affect the central nervous system (brain and spinal cord").
The diagnosis was more than frightening when we heard the news while Karlee was pregnant with Everlee. The internet provided scary, dismal information. Despite what we read and heard, my sister Karlee and her husband Scott took it in stride and researched beyond the black and white, speaking and emailing parents of children with Spina Bifida.
What seemed once a life of little hope proved to show all signs of hope and positive outcomes! Everlee has proven to be sign of hope and positive outcomes. She thrives and grows and get through every moment in life, many good but some extremely challenging. Within her first 8weeks of life she had 8 surgeries; most due to complications with her shunt in her head to regulate her Hydrocephalus.
During this year we have watched her grow, smile, struggle, thrive and advance. Her spirit is one we should ALL aspire to have; for such a little one, she has experienced more hardship, more struggle than many of us, yet she smiles, laughs and shines more than any person I know!
I want to wish my adorable niece a most special Happy Birthday Wish~ you are an amazing person; we love you so.... oh and congrats Saints (how appropriate for them to win- another example of life overcoming challenges and coming out on top!).
Everlee I love how you amaze us!
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1 comments:
Ohh, she is beautiful!! Love the pics, she is doing so well.
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